katethealmostgreat's Instagram Collection on LTK

Instagram

By katethealmostgreat

All posts from my Instagram, where I share tips for living your best life with chronic illness.

Accessibility takes many forms - it's not just having automatic doors and an elevator. ⁣
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In this photo, I'm using a cane. That's an obvious form of accessibility. But there are 2 other ones immediately visible: my sunglasses and my mask. ⁣
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My sunglasses are prescription because I don't wear contacts. Yes, prescription glasses are a form of accessible. ⁣
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Wearing a mask makes the world much more accessible for me. Since I'm on 5 immunosuppressants, I need to be able to wear a mask when I leave the house. ⁣
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Something else you might not notice unless you read my captions is that I include alt text for every single one of my Instagram posts (and images on my blog!). This is for people using screen readers and people with varying levels of sight. ⁣
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The thing is that accessibility is not one-size-fits-all. There are some things that are the clearest forms of accessibility, but it's so much bigger. Accessibility is not raising disabled people higher than abled people; it's getting us to the same level that abled people are already at. ⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣.⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣
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ID: Kate takes a mirror selfie. A white text box reads "The Many Forms of Accessibility." Kate is a brunette white woman wearing black shorts, a gray t-shirt, jean jacket, blue mask, and black sunglasses. She's holding a cane. ⁣
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#DisabledAndCute #Disability #Accessibility #ChronicIllness #ChronicPain

Week 11 of 2026 Weekly

1️⃣ IVIG means Kindle time
2️⃣ Pulmonary function test! Happy to report it was good and I hopefully don’t have to spend lots of time at the pulmonologist this year.
3️⃣ Attempting to be human after Rituxan last week

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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣.⁣⁣⁣⁣⁣⁣⁣

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IDs:
1️⃣ Looking at Kate’s lap. There’s an infusion pump and Kindle on it.
2️⃣ The equipment for a pulmonary function test
3️⃣ Kate takes a selfie. She’s wearing a maroon sweater, black tank top, and green glasses.

#ChronicallyIll #SpoonieLife #Asthma #InvisibleIllness #ChronicIllness

Week 10 of 2026 Weekly

1️⃣ Cross stitch and IVIG
2️⃣ I THOUGHT I HAD MORE TIME BEFORE IT WAS 78 DEGREES
3️⃣ it took 10 years (and multiple recipes/kits) for me to make a loaf of bread that looks like Regular™️ bread. You will see it when I manage this feat.
4️⃣ Rituxan Time

#CrossStitch #RheumatoidArthritis #AutoimmuneDisease #IVIGTreat@ent

🧵 Week 9 of 2026 Weekly 🧵

1️⃣ All done!! (Spring Peonies from #DMCEmbroidery
2️⃣ trying something new (while doing IVIG)
3️⃣ Rheumatology appointment!
4️⃣ March in New England still means snow

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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣.⁣⁣⁣⁣⁣⁣⁣

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1️⃣ Looking at a completed embroidery project
2️⃣ Looking at a table. A small in-progress cross-stitch project is on the left and an IV machine in a bag is on the right. Tubes are coming out of the bag and they go to under Kate’s shirt.
3️⃣ Kate takes a selfie in a doctor’s office. She’s a redheaded white woman wearing a green sweat-shirt, lilac mask, and green glasses.
4️⃣ Looking at train tracks and buildings on the other side of them from a sidewalk. It’s snowing.

#ChronicallyIll #RheumatoidArthritis #Fibromyalgia #NewEngland

This is the face of coronary artery disease⁣
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Yup, I have heart disease. ⁣
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I've mentioned this in bits and pieces over the last year, but in 2025, I was diagnosed with coronary artery disease.To be clear, I have basically the lowest amount of artery calcification possible to still have heart disease, but I still have it. ⁣
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Coronary artery disease is a complication of rheumatoid arthritis, as cholesterol can be increased by inflammation. As I hung around the border of coronary artery disease, I got COVID. ⁣
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COVID is also an inflammatory condition, which is why research shows that COVID can increase risk of heart disease. ⁣
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We're keeping an eye on it now, and increasing my cholesterol medication has helped keep my cholesterol down. Which is good because I already eat a pretty heart-healthy diet and exercise is tricky for me. ⁣
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If you have an inflammatory condition like RA or Crohn's, you should know that that inflammation can contribute towards cholesterol levels and therefore heart disease, especially if you've had COVID (and every time you get it increases your risks). ⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣.⁣⁣⁣⁣⁣⁣⁣⁣
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ID: Kate takes a selfie. She's a white woman with auburn hair wearing a white sweater, silver Claddagh necklace, and pink glasses.⁣
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#RheumatoidArthritis #CoronaryArteryDisease #HeartDisease #ChronicallyIll #AutoimmuneDisease

New month new calendar new goals! Checkout this calendar and other resources below 👇🏻

#LTKHome

I’m Kate, a very chronically ill millennial living life to the fullest with 10+ illnesses. Make sure you’re following to see what I’ve found to make my life as good as possible.

#LTKselfcare

🍞 Week 6 of 2026 Weekly 🍞

1️⃣ I’ve been making bread for ~10ish years and this is the best loaf I have ever made in that time. I’m very proud of it!
2️⃣ Current embroidery project is basically doodling, which is fun!
3️⃣ Ended the week with reading for fun ☺️

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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣.⁣⁣⁣⁣⁣⁣⁣

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IDs:
1️⃣ A loaf of bread in a bread pan on a stove
2️⃣ An in-progress embroidery project on a blue bedspread. There’s a box of embroidery floss and another with embroidery supplies.
3️⃣ Kate takes a selfie lying on her bed. She’s a redheaded white woman wearing a green sweatshirt and pink glasses and she’s holding a Kindle.

#GlutenFreeBaking #PunchNeedle #RheumatoidArthritis #Fibromyalgia

#LTKselfcare #LTKfoodie

The Internet is great for a lot of things, but one of them is the fact that when I wanted to try crafting again, I was able to find more accessible options. ⁣
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Growing up and through college, I loved crafting. I was on crutches a lot in high school, and I would paint them. I tried all sorts of crafting, and I was able to do it a lot longer than I was playing instruments. But my RA - or rather my difficulty in properly pacing - caught up eventually, and when I had my physical breakdown and moved back to New England, I stopped. ⁣
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I wanted to get back into crafting, and I've always wanted to do embroidery, so when the Internet introduced me to punch needling, I was sold. Honestly, my biggest motivator for not overdoing it on my new hobby is the fact that I enjoy it so much and I would be upset if I overdid it and had to stop. ⁣
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It still hurts that playing instruments - any of the ones I played for years - hurts me. I'm determined that the only reason I will stop a hobby is if I get bored of it, and not that RA or any of my other illnesses gets in the way. ⁣
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⁣I’m Kate, a chronic illness patient and advocate. Follow me for more content for chronic illness patients and their loved ones!⁣⁣ ⁣⁣⁣⁣⁣⁣⁣⁣⁣
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ID: An in-progress embroidery project on a blue bed next to open container of yarn and embroidery floss. ⁣
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#AlmostGreatHealth #AlmostGreatLife #rheumatoidarthritis #RA #rheum #rheumatoiddisease #arthritis #curearthritis #chronicillness #chronicpain #spoonielife #autoimmune #autoimmunedisease #autoimmunearthritis #arthritiswarrior #arthritisawareness #rheumatoidarthritiswarrior

Week 44 of #2025Weekly ⁣
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1️⃣ Started the week with refilling my pill boxes ⁣
2️⃣ My meal prepping is often not pretty in a picture, but sometimes it is⁣
3️⃣ IVIG! There’s a lot I can’t show because my personal medical information is allll over it but just know that there is a lot of this ⁣
4️⃣ Ended the week with more tests 🫀⁣
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⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣ . ⁣
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ID: ⁣
1️⃣ 3 pill boxes stacked on top of each other⁣
2️⃣ A bowl of food. It's kale, quinoa, sweet potatoes, and sundried tomatoes.⁣
3️⃣ A bunch of medical supplies in plastic on a gauze underpanel. There are some drawings over parts of it for privacy.⁣
4️⃣ A hospital wall with an art installation of anatomical heart scultupres.⁣
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#AlmostGreatHealth #AlmostGreatLife #ChronicallyIll #RheumatoidArthritis #RheumatoidDisease #Autoimmune #ButYouDontLookSick #AutoimmuneDisease #SpoonieLife #InvisibleIllness #Fibromyalgia #SjogrensSyndrome #POTS #CoronaryArteryDisease #HeartDisease

CHRONIC ILLNESS TO-DO LIST⁣⁣
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Living with chronic illness is more than "just" the symptoms and the appointments. Here are the things I have to do to feel just sort of not awful: ⁣⁣⁣
▪ Drink 80-120 oz of water⁣⁣⁣
▪ Consume 5-8 grams of sodium (sadly not an exaggeration)⁣
⁣⁣▪ Take pills 4+ times a day⁣
⁣⁣▪ Take an inhaled medication 2x a day⁣⁣⁣
▪ Don't miss a dose or a day⁣⁣⁣
▪ Sleep 8-12 hours a night⁣
⁣⁣▪ Move a little bit each day⁣
⁣⁣▪ Eat healthy (without gluten, dairy, corn, soy, or egg)⁣⁣⁣
⁣⁣▪ Keep an eye on my mental health (and manage it as possible)⁣⁣⁣
▪ Stay on top of my doctor's appointments ⁣
⁣▪ Work 30-36 hours a week to have health insurance⁣
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It's no wonder I get overwhelmed sometimes! ⁣⁣What's on your chronic illness to-do list?⁣⁣⁣
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⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣. ⁣
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ID: Kate and Harley the golden retriever hugging. Kate is a redheaded white woman wearing a black dress, pink sweater, and round pink glasses.

Week 1 of #2026Weekly - a bit delayed because of high pain over the weekend⁣
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1️⃣ First appointment of the year! Got an iron infusion AND my veins cooperated for the IV - a great way to start the year⁣
2️⃣ Iron infusion 2; IV did not cooperate as much but still a success ⁣
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IDs: ⁣
1️⃣ Kate in an infusion chair. She’s a redheaded white woman wearing a shirt with the old Maine flag on it, a blue mask, pink glasses, and blue headphones. ⁣
2️⃣ The Boston skyline at evening ⁣
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#ChronicallyIll #AutoimmuneDisease #Boston

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