katethealmostgreat on LTK
katethealmostgreat
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Long-time chronic illness patient in New England who helps you navigate living your best life with health issues.
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Week 1 of #2026Weekly - a bit delayed because of high pain over the weekend⁣ ⁣ 1️⃣ First appointment of the year! Got an iron infusion AND my veins cooperated for the IV - a great way to start the year⁣ 2️⃣ Iron infusion 2; IV did not cooperate as much but still a success ⁣ ⁣ IDs: ⁣ 1️⃣ Kate in an infusion chair. She’s a redheaded white woman wearing a shirt with the old Maine flag on it, a blue mask, pink glasses, and blue headphones. ⁣ 2️⃣ The Boston skyline at evening ⁣ ⁣ #ChronicallyIll #AutoimmuneDisease #Boston
Week 44 of #2025Weekly ⁣ ⁣ 1️⃣ Started the week with refilling my pill boxes ⁣ 2️⃣ My meal prepping is often not pretty in a picture, but sometimes it is⁣ 3️⃣ IVIG! There’s a lot I can’t show because my personal medical information is allll over it but just know that there is a lot of this ⁣ 4️⃣ Ended the week with more tests 🫀⁣ ⁣ ◾ ⁣ ⁣ ⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣ . ⁣ ⁣ ⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣◾ ⁣⁣⁣ ⁣⁣⁣ ⁣ ID: ⁣ 1️⃣ 3 pill boxes stacked on top of each other⁣ 2️⃣ A bowl of food. It's kale, quinoa, sweet potatoes, and sundried tomatoes.⁣ 3️⃣ A bunch of medical supplies in plastic on a gauze underpanel. There are some drawings over parts of it for privacy.⁣ 4️⃣ A hospital wall with an art installation of anatomical heart scultupres.⁣ ⁣ #AlmostGreatHealth #AlmostGreatLife #ChronicallyIll #RheumatoidArthritis #RheumatoidDisease #Autoimmune #ButYouDontLookSick #AutoimmuneDisease #SpoonieLife #InvisibleIllness #Fibromyalgia #SjogrensSyndrome #POTS #CoronaryArteryDisease #HeartDisease
I’m Kate, a very chronically ill millennial living life to the fullest with 10+ illnesses. Make sure you’re following to see what I’ve found to make my life as good as possible. #LTKselfcare
Chronic Illness
I’ve loved getting into punch needle this last year. If you want to try it - especially this kit! - I’ve linked some beginner kits below. This one was so fun!
I’m Kate, a very chronically ill millennial living life to the fullest with 10+ illnesses. Make sure you’re following to see what I’ve found to make my life as good as possible. #LTKselfcare
As seen on my most recent blog post! I’ve spent lots of time reading recently, and nothing is better than reading with a hot drink. Get this mug for the book lover in your life! #LTKselfcare
Hobbies
Accessibility takes many forms - it's not just having automatic doors and an elevator. ⁣ ⁣ In this photo, I'm using a cane. That's an obvious form of accessibility. But there are 2 other ones immediately visible: my sunglasses and my mask. ⁣ ⁣ My sunglasses are prescription because I don't wear contacts. Yes, prescription glasses are a form of accessible. ⁣ ⁣ Wearing a mask makes the world much more accessible for me. Since I'm on 5 immunosuppressants, I need to be able to wear a mask when I leave the house. ⁣ ⁣ Something else you might not notice unless you read my captions is that I include alt text for every single one of my Instagram posts (and images on my blog!). This is for people using screen readers and people with varying levels of sight. ⁣ ⁣ The thing is that accessibility is not one-size-fits-all. There are some things that are the clearest forms of accessibility, but it's so much bigger. Accessibility is not raising disabled people higher than abled people; it's getting us to the same level that abled people are already at. ⁣ ⁣ ⬛⁣⁣⁣ ⁣ I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣.⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣ ⁣ ⬛⁣⁣ ⁣ ID: Kate takes a mirror selfie. A white text box reads "The Many Forms of Accessibility." Kate is a brunette white woman wearing black shorts, a gray t-shirt, jean jacket, blue mask, and black sunglasses. She's holding a cane. ⁣ ⁣ #DisabledAndCute #Disability #Accessibility #ChronicIllness #ChronicPain
Week 11 of 2026 Weekly 1️⃣ IVIG means Kindle time 2️⃣ Pulmonary function test! Happy to report it was good and I hopefully don’t have to spend lots of time at the pulmonologist this year. 3️⃣ Attempting to be human after Rituxan last week ⬛ I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣.⁣⁣⁣⁣⁣⁣⁣ ⬛ IDs: 1️⃣ Looking at Kate’s lap. There’s an infusion pump and Kindle on it. 2️⃣ The equipment for a pulmonary function test 3️⃣ Kate takes a selfie. She’s wearing a maroon sweater, black tank top, and green glasses. #ChronicallyIll #SpoonieLife #Asthma #InvisibleIllness #ChronicIllness
Week 10 of 2026 Weekly 1️⃣ Cross stitch and IVIG 2️⃣ I THOUGHT I HAD MORE TIME BEFORE IT WAS 78 DEGREES 3️⃣ it took 10 years (and multiple recipes/kits) for me to make a loaf of bread that looks like Regular™️ bread. You will see it when I manage this feat. 4️⃣ Rituxan Time #CrossStitch #RheumatoidArthritis #AutoimmuneDisease #IVIGTreat@ent
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